Electroconvulsive Therapy: A Qualitative Study By Maede E. Jaredar M. Sc. In neuroscience, University of Lethbridge, Canada
Healthcare providers perspectives dominate electroconvulsive therapy literature. This study emphasizes on the importance and validity of storytelling from the patient perspective.
Women receive more ECT than men so this paper focuses on the female perspective with an aim to extend formal understanding of this genders experiences and encourage better practice.
Personal accounts are valid and can be utilized in research.
A side note: I’ve studied ECT for nearly a decade now and was taken aback out how considerate the researchers were of their vulnerable participants.
This is one of the most careful, compassionate pieces of ECT research I have ever seen.
It opens with this quote:
“Human beings are members of a whole,
Sheikh Saadi,
In creation of one essence and soul.
If one member is afflicted with pain,
Other members uneasy will remain.
If you have no sympathy for human pain,
The name of human you cannot retain”
Persian poet of the medieval period
There are so many layers of protection were put in place so participants felt safe and in control of their stories.
There was a psychologist present in case recalling their experiences of electroshock caused distress.
This is absolutely astonishing if you spend your days reading content like links below:
- How bad was unmodified electroconvulsive therapy! A retrospective study – PMC (nih.gov)
- The Camelford Hysteria: A Lesson for ECT? (psychiatrictimes.com)
- India: Women With Disabilities Locked Away and Abused | Human Rights Watch (hrw.org)
- Elsie Tindle | Courts and Tribunals Judiciary
- ECT related death not properly addressed due to COVID-19
Further Reading
Some Studies Cited in this Work
- Adverse psychological effects of ECT (actionautonomie.qc.ca)
- Voices From Within: A Study of ECT and Patient Perceptions
- Patients’ perspectives on electroconvulsive therapy: systematic review | The BMJ
- Review of Consumers’ Perspectives On Electro Convulsive Therapy
- Service users’ views of psychiatric treatments – Rogers – 1993 – Sociology of Health & Illness